OUR INVISIBLE ILLNESS... How we deal with Endometriosis ...

Ladies, never accept "it's all in your head". I heard that for 4 yrs before being diagnosed.

My gyn is a good friend of mine HOWEVER he once told me “nothing can hurt that bad”🤬
THEN, he came into radiology (where I worked) and was crying with a kidney stone. I leaned over and said “nothing can hurt that bad”👿
His attitude towards women’s pain changed that day😆

When Tati cries about health insurance; I also cry about health insurance.

Being a canadian and having universal health coverage, I mean saved my life for so many different reasons. Health is wealth.

As a student nurse wanting to specialise I gynaecology, hearing someone with this much of an audience talking about a hidden illness like this is amazing 💞💞
Thank you for sharing this Tati!

When Erika started talking about how they wouldn’t let her go home I teared up- I could feel that pain and embarrassment. I’m so sorry that happened 💔💔💔

Don’t let doctors tell you that you’re just “constipated”. That was all I heard for years before finally being diagnosed by my godsend of an OB. Was such a relief to finally know I wasn’t “crazy” or making it up. Cried tears of joy just knowing that, even though I’m in constant pain every single day.
Stay strong ladies!

Queen Tati drying her tears with her blendiful is iconic, btw.

TATI: Wiping tears with her Blendiful.

And mother's , PLEASE listen to your daughters. My mom never understood my agony ,even after coming home with pink shorts covered in blood. Your school story does happen,& it's incrediby hard.

As a woman who deals with PCOS, I love to hear “Famous” people talk about all there issues! I wish you both the best! We love you 😻

I also suffer from Endo! I had to have a full hysterectomy including my ovaries at 24. It threw me into menopause and my body has never been the same. I now have lupus, hashimoto's thyroid and ulcerative colitis. I feel your pain all too well. We are fighters!!! Sending you all my good vibes!!!💜🖤💜🖤🙌🙌🙌

We should call these types of videos “Makeup Therapy Sessions.” Because that’s what these videos are for me 😊❤️❤️❤️

The first time I noticed I wasn’t having a “normal” period was in 8th grade and I asked to go to the nurse because I had really bad cramps. My teacher told me no because the nurse wasn’t there (my school couldn’t pay the nurse to come in everyday) and to go sit down but my cramps went down to my upper legs and I couldn’t sit in the chair so I had to go lay in the back of the classroom...only one person came to check on me and found a blanket for me. When I finally had some strength to get back up I was so dizzy and nauseous I almost passed out. A lot of kids in the class laughed at me because I had mascara running down my face :/ they never let me go home or at least get medicine. Thank you for posting this. There needs to be more awareness

I love how much Erika is a part of your channel now. This was such an important video. Thank you.

"There's tension, there's tightness, there was pain in my eyes"
I FELT THAT.

Tati, my wife suffered for years. Her Dr. in LA did exploratory surgery and then recommended Dr Redwine in. Bend OR. After 5 hours of arthroscopic surgery, she went home in two days and never had pain or issues again. She turned 66 today.

This what two educated, humble women are supposed to do to the communities! Thankyou for this!

Nurse Erika really is a refreshing drink o water, love her energy

There definitely needs to be more discussion about invisible disorders. I've had migraines all my life, diagnosed by my pediatrician at 4, and I *still* hear "it's all in your head" and "oh, a headache?" 38 years later.

When she brought up the insurance issue I felt that. I’m in college and pay $200 a month and when I go to treatment for my condition it’s still $80 out of pocket per session. Ridiculous. Students should be insured. Not everyone is going to have parents with good insurance that they can stay under until their 26. Education is expensive and Students face the choice between health and degree every day.

You both should start a foundation for endo!!! You’re a huge voice with a great message. Especially in the month of March part of halo proceeds could go to research or even women who are struggling to pay for doctor visits.
I would definitely support that 🥰💕

I was diagnosed with stage iv endometriosis after 6 years of seeing doctors. So many years spent trying to get pregnant being told I just had severe cramps. So happy that this disease is finally getting recognized so other women can get checked!

I love the way Erika looks at Tati when she talks and vice Versa. You can see how much they admire each other. ❤️

Honestly when she mentioned the health insurance part that’s what I’m struggling with right now. I need to go to the doctor for everything , but I can’t cause it’s soo expensive.

I’m a medical student and I definitely think endometriosis is something that needs to be talked about a lot more so thank you so much for using ur platform so spread awareness! 😌❤️love ur videos x

The amount of times that I was called a drug seeker and accused of being a drug addict is just ridiculous. When I had all the classic symptoms of endometriosis. I went to so many doctors, so many ER visits, so many specialists and it took me finally researching enough to find out about endometriosis on my own. Then when I went into the doctors they confirmed it. They made me feel like such an awful person.

When I hear these stories about health care in the States I feel very fortunate to live in Canada. We might have to wait for specialists etc but we never have to worry how to pay for it. We are fortunate. Many people who live here complain about wait times etc but have no idea what it must be like to not have it or have to worry about paying the bill. Hoping all the best for you always Tati!! 💕

It feels like I'm seeing 2 Tati in 1 video HAHA. who's with me? 😂

Tati, Erika, this has me in tears. I’m that girl in her twenties you were describing. I’m working close to full time and also in school full time. I’m drowning in credit card debt (from a family emergency), student loans, and living week to week. I’m consistently struggling with menstrual pain and uterine issues and I cannot figure out what’s going on. I’ve tried going to several different doctors and there’s no help. I’m also terrified of getting into more debt. Just today I went in to my campus clinic and had a horrible experience with a doctor basically dismissing all of my symptoms. When you told me, “you aren’t crazy, and you’re not a bad person for trying to survive,” I literally burst into tears. I’ve been needing to hear that for so long. I feel like I’m going crazy, and it’s all in my head. Thank you so much for making me feel seen. 💕

I suffer from fibromyalgia everyday. Thank you for shedding a light on invisible illnesses 🙏🏻

I was dismissed for over 10 years before finally being diagnosed with endometriosis and PCOS.

It hit hard when you talked about the cost of medical help and have to choose between your survival or your health. I just didn't think about it since I can be hospitalized and not have to pay a single cent. Where you born make really a difference

as a woman with pcos, i really appreciate when women share their experiences and speak out against double standards. reproductive health is never discussed enough and that’s why so many women are suffering. love you tati 💖

I'm still shocked by the difference in health care systems between the USA and Australia where I live! I'm so grateful to the Medicare system. xoxo

I STARTED TEARING UP ONCE YOU MENTIONED INSURANCE ❤️🙏🏽🙏🏽

Thank you. Thank you. Thank you. Thank you, For making this video. Having Endo can be so lonely and you can feel so misunderstood. I was young when my Endo first became an issue and it took YEARS to find a doctor who took me seriously and more importantly took my symptoms seriously. Finally after trying hormones, Lupron, and several other treatments my Endo had become too aggressive and I had a hysterectomy. While it was sad and took time for me to grieve that loss, I know it was the healthiest choice I could have made. Thank you for using your platform and bringing awareness to a devistatingly under talked about disease! You are changing lives with this!

I’m so glad you’re speaking about this. I have endometriosis, stage 4, it’s so severe that it’s on my diaphragm and possibly in my lungs. I wish people understood how bad it can be. Girls, it’s NOT normal to be debilitated by your periods.

Wait I didn’t even know there was two Tati’s 😳

I thought I had some mysterious GI illness and whenever I went to the doctor I would get told it was probably stress related or anxiety related because every test came back negative. Turns out I am pretty much textbook endometriosis, but no one diagnosed me until I researched and suggested it. Who knows if I wouldn't gotten the right diagnosis if I hadn't basically done it myself.

I really find it deplorable that one of the richest country's in the world does not have some type of universal health care to take care of their citizens. I could not imagine having to pick between eating for the month or a doctor's appointment or a trip to the ER. I could not fathom the loneliness a person must feel, dealing with illness and feeling like they had nowhere to turn.

I’ve always tried to describe it as “a flaming sword through my stomach and back” and hearing Erica say “burning piece of metal” just shocked me. I’ve never heard someone describe it like me

When you started talking about the health insurance, and not being able to afford treatment, etc. I teared up. I am currently in this position. I have not been diagnosed with endometriosis, however I strongly feel that this is what I have been unknowingly suffering from for several years. I have done so much research about it & I am currently trying to cope with symptoms with a holistic approach, until I can somehow figure out an affordable option for insurance. 🙏

I'm so glad people are starting to talk about it! I've been struggling with endo for years and have never felt like I've really been able to talk about it, so I'm happy that it's starting to change!

I have pcos and two benign tumour in my uterus. I never had children, I'm forty and I have horrible cramps and migraines, but no one takes me seriously because "it's normal, women stuff". I just keep it to myself, but when I'm in serious pain I still have to hear that I'm beig "crabby", even under stressful work. My husband doesn't judge me or say nasty things, but other people just act like I'm a bitter woman. Which is not true, I'm a nice loving person, but sometimes under tons of pain I just can't keep a big smile all the time.

I'm reading this from Spain, luckily we have every single medical thing for free, and it's really sad to see people out there who are in such financial problems because of health, it's insane, it shouldn't be like that anywhere in the world. It's HEALTH it's selling ours lives.

My mom has been suffering for years and has finally had the hysterectomy she has been begging for for years. She 4 weeks into recovery and even though she is suffering from the surgery itself she is at peace knowing THAT pain has finally gone. It was absolute agony for her. Stress is a huge factor! If you feel something is wrong it usually is.

Oh my gosh, stop I'm holding back tears and I'm only 9 minutes in. For the first time EVER I finally feel understood and like I'm not alone. Thank you Tati and nurse Ericka, your journey is more than make up. I hope you see that! Love you so so much!

Thank you for speaking out about Endo❤️ when I was 17 I was diagnosed with Endo and I was still in a lot of pain months after the surgery and the doctor told my mom I was faking it to skip school and need to see a councilor. She told him "no she needs a better doctor" and hung up

Ooo gurll, I got my period in 6th grade too and mine was very heavy and we had to keep our pads in the nurses office bathroom, so I had to change mine almost every hour and she had the nerve to say “ you don’t need to change it every hour, stop coming in so often.” And it sucked. I was now embarrassed and scared to go in there. It was awful!

I was diagnosed at 16, I felt alone none of my peers and even adults didn’t know what endo was. Awareness is so important, one of the reasons I made a video about my endo story. 🥰 it’s so nice watching others and hearing stories of other people with endo.

This video is incredible and exactly what the world needs to see! I have Endometriosis and have been in pain since I was 12 but was only diagnosed in 2017. It’s a hard battle but you can definitely overcome and get through it. It’s amazing to talk about it, be apart of Facebook support groups and find a doctor that ACTUALLY listens. I’m from Australia and thankfully our medical system is pretty good (I have private health) but it’s still expensive and time consuming. Girls, we need to stick together, offer support to each other and understand we are all going through struggles. 💛💛💛⭐️

i clicked so fast, i’m so glad she is bringing awareness to this. all love and support to you both.

I am 42. I was misdiagnosed until I was in my late 30's. By the time I was diagnosed with endometriosis, there was no hope for me to get pregnant. That window would have been small many years earlier. Unfortunately the doctors here only cared about weight and thought that was the one and only thing affecting me. Me and a lot of other women I know. By the time I was in a place of wanting a child, the specialist said sorry there's nothing I can do. I was devastated and angry for years. Now I've made my peace with it. Technology and education about endometriosis has increased, as well as public awareness since I was fighting with the doctors here.
Tati and Erica, thank you so much for opening your personal struggles to your audience. I can't imagine how hard it must be to talk about all of these issues, but please know how much it means to me and to women all over the world.

Thank you for using your platform to talk about women's health! I have PCOS and my best friend has Endo, somedays the only comfort through the pain is talking to eachother about it

You two have such a beautiful relationship. Love it! Thank you for sharing about this topic. The more it is talked about, the better.

Tati: *gets emotional* *proceeds to dab her tears with her blendiful*
That's when I knew she REALLY loves the blendiful!

People: "Oh you must be 3 months pregnant... what's the name?" Me: "Endometriosis."

Thank you for speaking on this. Ive dealt with Endo since I was `16 and went undiagnosed for many years. I teared up watching this video. Thank you for using your platform to bring light to an "invisible illness".

Crying because I’m having my surgery April 10 to find out if I officially have it. I’ve had EXACT symptoms you guys are talking about and never knew why and I finally don’t feel freaking crazy. IM NOT CRAZY

We need more women like you with a huge audience to reach the women whose doctors are failing them. I was one of those women and youtube helped get me through when my doctor kept telling me I was dramatic and it was all in my head. THANK GOD i went to the ER and they referred me to a gynecologist!!! The doctors who all turned me away have NEVER apologized for doubting me even after seeing the results for themselves. Anyway, thank you ladies because i truly beleive we need to keep sharing our stories ❤

My aunt was told she had IBS for the longest time ever while she actually had Ovarian Cancer and it was diagnosed so late that she passed away within a year..it has been 6 yrs now and it is really a very painful thing to happen to anyone
Sending Love and Best-Wishes to both of you from
Pakistan

I really appreciate you bringing up health insurance. Please everyone, remember that you can change the health system with your vote!

It's amazing that this was published the day of my excision surgery. I'm so happy to see you talking about this and raising awareness about endometriosis. I lived for years without a diagnosis or support systems when I was in pain. Thank you for putting this out there!
Unfortunately I have to go back and get another surgery in 3 to 9 months, but I'm already in shock that somehow recovering from being cut into is less painful than my previous flare ups.

I had endo all my life and didn’t know it and didn’t know anything about. I was told I had PCOS. In July of 2019 I went to the ER for stomach pain and was diagnosed with stage 2 endo cancer. I have no children. I am a new subie I love your Chanel and content.

My daughter had Endo surgery at 22. We are blessed she has a wonderful smart Dr.. 4 months later she was diagnosed with stage 3 triple negative breast cancer. She is fighting hard.

I do not have endo, but I did learn something from watching this video. Thank you for being open about medical struggles.

I’m in tears, I’ve been suffering from IBS and the whole medical experience was miserable. And I still struggle in silence daily cause it’s hard to understand. Love you guys for being so open.

I am so glad that I live in a country where periods and everything surrounding it isn't a taboo. And omg... The American healthcare system is insane... who had the idea to make survival a business. It's horrible.

I had to make the decision to have a full hysterectomy last year at 23 because of my severe case of Endometriosis, Adenomyosis, and PCOS. I want to thank you for sharing your stories and bringing awareness to Endo. I related to this so much and I know so many other women can too. Love you Tati!

Wow, I’ve watched a lot of your videos but never knew you had endo! Thank you for sharing Tati!
I was diagnosed in 2017 and it’s so beautiful to see how people start to talk about it and make it public because it needs to be talked about !

This is so informative and comforting to know other woman go through these issues. I just had ovarian cysts rupture and didn’t go in to the doctor because of the cost, even though I was doubled over in pain. Thanks for opening up and being so honest.

Yes girl!!! Louder!! Thank you!! I have endo (stage 4) and only after 7years of infertility, pain, surgery, Fallopian tube removal, and rounds of IVF I have a wonderful brilliant miracle of a daughter. I still suffer from endo. Anyways long term fan and supporting you in this journey ❤️♥️🌈

Watching this and sobbing while nursing my own searing endo pain. I'm exhausted and bloated and I finally feel understood. Thank you for sharing.

I have self diagnosed myself with Endo, and have finally found a doctor who will listen. Thank you for sharing your stories, and for helping spread awareness! There truly are times when I feel alone, but I know that there are always ways to change my outlook. God bless! ❤️

This is why i love you so much. I needed to hear this and youre such a loving person. Please dont ever give up❣ we appreciate EVERYTHING you do.

I have endo as well and it's sad how so many of our stories are similar with "doctors didn't believe me", "people tell me it can't be that bad", "it took years to get a diagnosis", "everyone has a 'cure' to recommend you", etc etc. I cut friendships after my diagnosis for ppl that couldn't or wouldn't try to understand.

I know is Tati’s channel, but I want to hear Erika to talk more when she comes!! ❤️❤️ thank you ladies for sharing, this is very powerful!

This is really important. I honestly had no idea this even exists. Thank you for teaching me 🙏

THANK YOU SO MUCH, Tati!!! I wish more people talked about endo. Endo changed my life and when there are influential people talking about it, it makes it so much easier to cope. Thank you for sharing your story and thank you for being you! ♥️

I’ve struggled with horrific and debilitating periods forever (I’m in my 20’s now). Can’t stand up, curled up on the floor, severe hot flashes, vomiting, excruciating pain, severe bloating, fatigue, skipping class, calling off work, having to schedule my life around my expected period date each month... Every time I just get told to take ibuprofen. I came across an article last year where, for the first time ever, I read that this is NOT normal and it really changed my perspective. The fact that this gets so easily brushed off is disturbing. I don’t know whether I have endo but I’ve been suspecting it. I mean what the heck else could cause this? It’s just discouraging that it is difficult to diagnose endometriosis without doing surgery. Thank you for talking about this.

My husband says I have endometriHOEsis. He thinks he’s hilarious, but at least he’s supportive.

You are such an inspiration. Thank you for sharing your story more in-depth. I have never suffered with endometriosis and I found this very informing to me that there are so many women who do suffer with it. Keep sharing what’s important to you. Love you Tati!

Bravo, Tati & Erica! Thank you for starting the dialogue on so many important topics. BTW, I'm so loving your beauty products!♥️

I was diagnosed December 4th 2019. An emergency surgery led to my diagnosis and for me to have a 12cm mass removed on my right ovary. I was in such pain and at the time I didn’t know what it was from. Which is why I went to the ER and was told it was my gallbladder. It wasn’t. A beautiful nurse who was doing an ultrasound saw that something wasn’t right. She took matters in to her own hands and I’m glad she did. She decided to do a vaginal ultrasound and saw the mass. At the end of that surgery I was mass free but also down an ovary and Fallopian tube, I’m 30 with no children...yet. I was devastated. Then the diagnosis came. I just had a second surgery February 5th where they had to reopen all of my healing incisions for yet another cyst/mass removal and abdominal lymph node removal. It’s not something I ever thought I would have to go through but at the same time I do feel stronger and empowered to do so. I’m so happy more women are talking about this. It needs to be brought to our insurance companies and medical researchers attention. It’s not something we can help. We don’t do this to our selves. It’s not from living life a certain way. Thank you thank you. We can all help each other with communication

Don’t have endo myself but the 7/9 doctors I have seen don’t have a clue what I have. So thank you for this video makes me feel like I am not alone in the struggle to find out what’s wrong with me, and for people thinking I am playing my symptoms. And for telling me that I can survive anything sometimes I honestly feel like giving up but to hear you two who have a somewhat similar story and are doing amazing makes me believe I can!
Thank you Tati and Erika xx

Thank you for posting this, Tati. I have been struggling with endometriosis symptoms since 13 and was diagnosed at 17. It still causes massive disruption to my everyday life, especially with my education and mental health! However it's so comforting to hear other women, especially those with a huge platform like yours, confronting and talking about the situation! Thank you for your personal tips in managing the condition, I can't wait to try some of them out! xo

Thank you for sharing this. I've got Poly Cystic, Endometriosis and dysplasia. NO one talks about it out loud and it's great to hear folks like you and Halsey talk about your issues.
Thank you for making yourself vulnerable and sharing.

I’ve had endo my whole life. It was found by accident during a different surgery. Quickly explained all my pain. I had three laparoscopies that did nothing before finding a specialist that knew what she was doing. That specialist did surgery and it helped immensely. She also told me there was a good chance I wouldn’t be able to have children. I have a beautiful daughter. Never give up hope.❤️

Tell me what you want but a system where you have to choose between suffering pain or bankruptcy is broken.

I can’t even thank you enough for posting this. I have been a subscriber for years and I also follow Erika and you both make me feel less alone with my endo journey.

I think this is probably your best video. Thank you for sharing your journeys. I hope you and Erica continue to videos like this!

Just when I thought this video couldn’t get anymore empathetic... when you started crying about not having insurance. That’s me right now. As much as I want to have surgery so I can get to the root of this disease and not have to rely on medication, I know that’s realistically not an option for me.
One day I’ll be in a better place where I’ll have the financial means to finally fix my health but for now, I’ll just have to push through. But you made it, Tati. And that gives me hope. Thank you.

I’m so happy that you’re talking about endometriosis because my doctor and I are finally realizing that may be what I have going on and it’s so helpful hearing what other people have experienced 💗💗

Thank you for sharing your stories ♥️ Thank you for highlighting the struggles of the un-insured as well. Love and light to all suffering.

Hearing some one with such an audience talk about the same struggles I go through is so helpful. Thank you Tati & Erika ❤️❤️❤️

I was young.. throwing up in school monthly from the pain, having to be driven home from work because of it, in the ER every month.. basically looked at like a pill seeker..getting in trouble at work when I was an adult for missing work.. and then finally saw an OBGYN who diagnosed me with endo.
It’s awful what we have to go through just to get the diagnosis.
Thank you for sharing!

I feel like we are blessed in the Netherlands for such a good healthsystem.. I feel sorry to hear your story about doubting to go to a doctor (I can't even imagine to doubt something like that). You health must be the one priority and not your job.. Glad you did go to the doctor Tati!

When I was 16, I had an amazing gyno who really listened to me and she did research and came back and told me she thought I had endo. She started treating me. My life has significantly changed since then. Since I was 13 I thought maybe I was just different cause my periods lasted 7-10 days and went through massive amounts of pads and tampons. I remember at 16 crying to my mom cause I had been having period pains for 2 weeks and she immediately took me to her gyno and I am so thankful that I caught it early.

Have my first lap in April. I can't wait, praying it helps. Thank you for speaking up about this!! Agree with everything you said.