소스 코드
- 게시일 2021. 07. 16.
- In this episode of Field Notes, we talk to the team that set out to untangle the bureaucratic nightmare that's keeping an overlooked group, adults living with disabilities, from getting the care they desperately need.
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Watch the full report, "A Broken System Is Failing Thousands of Americans With Disabilities" - krplus.net/bidio/iq-QhZdkeqC6imU
They should also mention that people who get benefits aren’t allowed to save over 2,000, so good luck getting a house, getting out of debt, saving for medical procedures etc
All states now have ABLE accounts up and running. Anyone who was declared disabled before age 25 can open one. It's a way to save money and not have it count as assets.
I have a disability. I have a blindness. It's very hard for me to see a specialist cause my insurance refused to cover it which makes it even harder for me to find a doctor who can help me. On top of that, it's very expensive to do this.
High functioning autism: I made it just far enough, to be buried by debt, medical and education. I'm basically bankrupt, I need medical attention, and I'm not capable of taking most social jobs. This is a terrible problem in this country.
This is a nightmare
+ people with adhd and/or autism are often denied insurance
If you think it looks difficult taking care of one person with developmental disabilities imagine taking care of 6 by yourself.
That's what this field has degraded into.
Imagine being one. I would happily volunteer for euthanasia if that was an option
@@alakani What are you talking about? This seems pretty shallow.
@@Robert_McGarry_Poems Yes, it does seem pretty shallow that someone is complaining about what a pain in the ass we are instead of complaining to their boss that they don't get paid enough
@@alakani I think euthanasia is a good idea, only if you can spell it.
@@jerrymchummer8549 Trolls like you and narcissists getting jobs as social workers like OP are like 75% of why I want to get euthanized
Remember watching this on TV, thank you for making this. Epileptic (with intractable seizures) here and afraid my care from family is a getting scarce as they are aging. The persons covered in this piece are FAR more in need than I am and the DHS views people with my capabilities, persons covered within the piece, AS EQUAL, no in between, DHS sees you as you either degrees of LTC or NOT AT ALL. The red tape with state DHS (Hawaii I'm thankful they are quick BUT harsh with filling out paperwork, Nevada where I thought I tried contacting is HORRIBLE, no contact with me trying to move but have given up). This piece did bring up the absolute biggest fear: loneliness, if I can cognitively navigate it and feel this, feel the darkness that looms over even as more able than most, empathizing with everyone in the piece made me tear up and hope the best for them. And being optimistic as a nihilist (because extra brain activity/feelings = seizures) is a different feeling for me. (apologize for the long comment)
The current system is not empathetic to the individual and my heart goes out to you brother.
@@timbaker2597 Thank you bro.
I'm high functioning Autism and what little help there is out there for working disabled has long waits (months for things like Vocational Rehab) so we are pretty much on our own with no support and help.
That's why our average age of death is 36
#AutisticLivesMatter
What resources have you used to try to get vocational training? I can’t find any places that don’t want an account into or it background neither of which my brother has.
@@alakani I'm 36... 😣
@@alakani mostly from obesity and self-harm, the average healthy autistic adult will lived to age 60 to 75 years. my dad had autism he died at age 73.
My brother has a terminal illness and still has not been approved for disability.
The truth is that the government doesn't really care for disabled people. so we're on our own.
If you have a disability your best chance of getting work in working online, there are thousands of online business looking for employees. you can make extra money along with your SSI.
You pay crappy wages and they're life expectancy drops. The same with how much money they get for food. They all end up having medical problems from simply their diet and what they can afford to eat and the staff has the time to cook. Open the cupboards and see how much Alfredo they have. How many tubes of crappy hamburger is in the freezer. And they still have barely enough to eat
You talking like this is a tragedy. In the past people didn't reach even 50 years old. Be thankful that you find food to eat
@@abomariah403 This is a tragedy you dimwit. Don't talk about the past, society must continually progress and in the process, take care of everybody.
Charlemagne was 70 year old you dunce!
Caesar was in his 60s when he got stabbed
Rammesses II was NINETY YEARS OLD!!!
Finally! thank you for shining a light on our issues
I’m hoping to cross the country next year in my electric wheelchair to bring awareness to this exact issue!
@AJ ? I don’t understand your grammar. I’m quadriplegic and am lucky to get help. I’m well aware of those who can’t. I’m trying to help them.
Let's unite to challenging these in inequalities. Message me back if interested?
I’m an American with a family member with disabilities and the lack of services and government assistance has literally torn my family apart. Family members have had to quit their jobs and make financial sacrifices to become full time caregivers just to help out. Some family member can’t even afford to help out and that created tension and animosity. I personally had to drop out of school and became a certified caregiver, full-time. It was one of the hardest decisions I’ve ever had to make. I don’t regret it because my family member with disabilities deserves the help, care, and love. But it TOUGH, to say the least.
We literally need an army of angels to handle this.
Pissed off Democrats are the equivalent
@@joshuabingham9115 he said angels not means testing. The few unspoken socialists in the dem party are the only ones who are trying to give people medical coverage and elimate private insurance. Liberal democrats are literally trying to perpetuate the private health Industry which is killing 50k+ people every year that includes people with disabilities like this. But don't act like Joe Biden democrats are helping people with austerity politics.
We need fundamental systemic change
I'm in the trenches with this one. I work in this field in Maine, where are main issue is staffing. We've had two open beds at the house that I work in for almost a year and a half.
What about those children who are caring for parents with disabilities? Adults who are under 65 can’t get the help that people over that age can get. This leaves many people dedicating their whole lives to their parents or spouses with little to no help. It is just screwed up!
This is the exact kind of thing I needed while going through a depression and big life changes which have sparked big panic pretty deep with in me. That due to these changes and the current state of our modern American society standards, that me and my younger brother will someday be facing a big challenge of how to sustain a normal life and not becoming homeless or lose all that my family has because my family rents everything, we own nothing, so if a sudden event happens and Me and my brother can't pay bills on 4 storage units, rent for the house, etc. We would not just be homeless but lose the memories and meaningful items from our family that we've been good at passing down to from grandparents to parents to grandchildren. It's just this fear that has appeared after going through multiple surgeries from injuries which made me have to leave my job I've held for the last 6 yrs and my 55yr old dad having multi-strokes out of the blue. It just out of no where is sorta giving me mid life crisis type stress so. I really appreciate the work you guys do. I really hope our country enhances how much it helps its own people keep a base standard of living, so we don't see a huge increase in a future generation of lots of struggling/homeless middle aged family members like that once they become stranded on their own. Not all of us are blessed to live in families who own things and homes.. I think poverty is a way bigger issue then anyone wants to admit and if the country was smart it would help with that issue before it gets super bad... ❤️❤️❤️❤️
Thanks for this, I am on disability after having an industrial accident in the 1980’s and getting shafted by my attorney. I recently suffered a fall and am needing care (probably a partial leg amputation), but due to Covid, arrogant orthopedic surgeons, limited access etc. My current situation will result in a slow tortuous death which has been going on for 4 years now.
Truth. Thanks
This story only tells 1% of what really goes on, however many of the points in this video are true . At the end of the day you have to really work with the agency or organization to really know what its like, this is something you can not really explain in a documentary.
The issue is that these jobs taking care of people with is not really financially worth it.The work that is required is very difficult since you have grown people with the mindset of a child.This is an issue that is very complicated and requires more money put into the issues.
Maybe if they paid 15$/hour like some other places maybe they'll attract more assistance
The income the majority of these people live off of would have to be increased for that to happen.
SSI is what the majority of people with intellectual or developmental disabilities live off of, or in some capacity financially supported with.
The last time Social Security got a cost-of-living increase was in 2009.
Which is what they're talking about in this piece when they say "these communities need to be prioritized"
that would require more government funding
@@alabalason it a disabled person’s income is low enough, the state pays for the care. I know, I’m a caretaker.
@@rainbowgirlism I am a direct support professional as well.
The state supplements their SSI in order to pay for them to live in a ALF or SIMP home and the like.
@@Nzombii I say that would require offshore bank accounts being taxed and loopholes being shut.
People have to pay their taxes instead of lobbying the government so that they can create laws and essentially the tax code that they abide by (or sidestep really)
Everybody acts as though the we have to pull this money out of thin air when our government spends more than the top 10 governments combined on our military.
But everyones going to act there's not even a sliver of money in there that we could cut back on in order to take care of the disabled and the elderly and our country?
I work in a prison in Washington State, and the inmates tell me all the time that the state tells them they get disability benefits because they are a felon. That they have a mental disability because they can't follow the rules and laws of society. So they qualify
.
I will keep on fighting for with disabilities like me
Why the footnotes?
Where’s the footage and actual commentary? How did these parents make it work for so long? Is their another video I’m missing out on?
Freedon is just a shout away
Didn't I already watch this? I don't think I can do this again.
I been working with people with cognitive, and behavioral disabled for over 🤔 35 years...If you have no college you get no respect for REAL EDUCATION EXPERIENCE ...even if you get 2 year degree in poety;
You receive more RESPECT ! I would love to travel and care for Them... They become my family and friend.
So what Pennsylvania needs if it has 5000 people on that list, is 5000 healthcare workers that do that job & Pay them $500 thousand to $1000000 per year, because they deserve that much! Not 5000 new millionaire entrepreneurs backed by government loans..... to be clear I'm just talkin 💩 because I don't know how many millionaire entrepreneurs backed by government loans exist in Pennsylvania, or even in the US or the world, but I'm a disabled veteran and I think those care workers should not be making less than McDonald's workers they should be making more then the POTUS! At least 250k / year no less
True
America, Germany & Australia is bad with Thier disability care. Not long ago they used to just buy a bus ticket then throw them on the bus & forget about them. 2021 it's not that different.
✊✊✊
No money for healthcare or education but there is a lots of money for f35 hmm
This is what I hope the coming Socialist Revolution will fix in this Nation. Everyone should have easy and free access to Socialized Medicine. No change in quality of care other than it getting better. We shouldn’t have to struggle getting things we are owed. We were promised Life, Liberty, and the Pursuit of Happiness; but we aren’t given that. We are left struggling to take care of ourselves and our friends and family, even strangers deserve the help they deserve. But this government doesn’t care about us so change must be done now. The Revolution will come to give us our Life and Liberty back. The United States Government is the enemy of the people because they’re letting Corporations take over everything and let them treat us as dirt. While politicians line their pockets with money from Corporations we get poorer. I’m done being treated like trash. And if people try to shut me down and make me feel crazy for these views and truths then you are just supporting a broken system because it doesn’t effect you one bit so you don’t want change but the world doesn’t care if you don’t want change. It’ll come no matter what.
Explain how the socialist revolution will increase Liberty for the american people.
An actual idea, GOP. 🤔
Let’s start a limousine service for the consumers clients using tips Jobs this way the staff will feel appreciated the good ones and they will know that you like them close the limousine service will help you try to go on dates
Walk a around and if the client the consumer your clients they got Van my agency has six vans on the weekend they do nothing with them now they say the customer wants to go on a date why can’t they use that then why can’t the agency have a driver to use to help the consumer call the client that’s what therefore nope I need to sit home on the weekends they forgot how to fund raise and a tip jar is the alternate Fun raiser
I need a job 😳 ijs
Where do you live?
@@aspectratio6580 in your backyard 😳
@@aspectratio6580 in your backyard 😳
@Happi 😂😂
I need help my how do you say refuses to give me staff Permanent staff to go to medical appointments I missed a lot of them and I had a mental break down and went to New York met somebody like Meet jhon I don’t know if anybody will believe me I’m sitting with the president but I can’t take pictures security reasons. I have incompetent staff running my agency it’s a scam I want to go back to On Your Mark but the only way I can go back if I go into a group home which I refuse to do I’m i’m too independent for that they keep fire people for stupid things like making mistakes on there i’m card have a good staff member hide by Kim she took away all my medical she help me get my ids Can’t do a story on PCS personal care center working with consumers for a new way
SOS CUBA.
DECENTS.
WORLD.
HELP CUBA.
ALWAYS.
FREEDOM.
THANKS.
1st
#FREEBRITNEY